By Christian Lenk, Nils Hoppe and Roberto Andorno, Christian Lenk, Nils Hoppe, roberto Andorno
This booklet offers an summary of present themes in legislation and ethics on the subject of highbrow estate. It addresses useful concerns encountered in daily events in politics, examine and innovation, in addition to a few of the underlying theoretical strategies. furthermore, it offers an perception into the method of foreign policy-making, displaying the present difficulties within the region of highbrow estate in technology and learn, highlighting adjustments within the primary realizing of universal and personal estate and the potential implications and demanding situations for society and politics.
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Extra info for Ethics and Law of Intellectual Property
The Genetic Revolution and Human Rights (New York: Penguin, 1999), pp. 38–53. 28 Ethics and Law of Intellectual Property the possibility to identify individuals) sufﬁcient for ensuring the conﬁdentiality of that data? How could we prevent the use of genetic information for discriminatory purposes in the areas of employment and insurance? Do people have a “right not to know” their genetic make-up? Should private companies be allowed to manage genetic databases of the entire population of a country?
On this point, therefore, the utilitarian will see the sense at once of the compromise approach. Conclusion Bioethics has become a natural home for human rights thinking because rights are designed to reduce the risk that individuals will be mistreated by researchers who, however well intentioned, have their gaze ﬁxed on larger goods. Relative to this human rights standard, the compromise model of biobank governance does well in insisting that individual participation should be voluntary and that no one should be coerced or tricked into participating.
Townend, “When Is Personal Data Rendered Anonymous? Interpreting Recital 26 of Directive 95/46/EC”, Medical Law International 6 (2004): 73–86, p. 79: “Now, rendering personal information non-personal [anonymous] is surely not by itself sufﬁcient to preclude a violation of one’s moral integrity [qua a privacy interest]. That this is so should be clear from contemplation of the idea that information on the menstrual cycles of Roman Catholic women, who have provided the information for their treatment, might be used for purposes of research into chemical contraceptives without Biobank Governance 21 in a case such as Greenberg, if the sources have a privacy right so conceived, they should be able to resist commercial exploitation of the information where this is against their will.
Ethics and Law of Intellectual Property by Christian Lenk, Nils Hoppe and Roberto Andorno, Christian Lenk, Nils Hoppe, roberto Andorno